If We Knew Then - Down Syndrome Podcast

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Parenting #218

We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.

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Recent Reviews
  • V10264
    Excited to learn about these fellow parents in the Ds community
    I just heard about this podcast while listening to The Office Ladies (I’m about a year behind). My first episode was your wedding anniversary which struck a chord as my husband and I just celebrated our 20th this fall. We also have two kids (our oldest has Down syndrome) - so I’m looking forward to hearing more insights from you guys! Thank you!
  • Spraz
    Empowering and Hopeful
    The interview with Jake Pratt was so wonderful. My first thought when I found out my baby would have Down syndrome was, “I will never get to take my child to college! He will never be independent, he will never drive!” And that is NOT TRUE! So grateful for Jake’s example.
  • DadvocateGuy
    This podcast makes me smile
    Stephen and Lori really put themselves out there in these wonderful, wide-ranging, and honest podcasts. As a dad of a young man with DS, it’s nice to tune in and listen to calm, thoughtful and deeply kind-hearted people covering personal subjects I don’t get around to (or avoid) thinking about. They make me think and smile, and that’s a gift. Thanks, Team Saux! ~ Brian, a dadvocate
  • Ksweet24
    Special Needs Mom
    This podcast has been such an encouragement to my heart during my first 9 months of adjusting to having a baby with Down Syndrome. Thank you for sharing your stories with us.
  • A Childers
    Encouraging
    This is such an encouraging and empowering podcast. Thank you for all you do for our kiddos!
  • Mexitalian70
    Casual, Informative & Educational
    This was a insightful and powerful podcast! I loved the passion and strength that Georgianna brought. It’s great to know that there is a advocate like this that can stand up for all those parents that are emotionally drained and frustrated from not being heard.
  • johnnydc6565
    Informative and enlightening listen
    Great listen. Stephen and Lori are engaging and quite obviously excellent parents. They share their stories of lessons learned in a relatable, authentic manner. Big fan of Lori, she’s always so thoughtful and kind! Growing up and sorting out the world can be a challenge, with or without special needs, and this podcast provides a wonderful resource for all parents!
  • BG & SL
    Non-judgemental & supportive insight
    “If when knew then” offers non-judgemental & supportive insight to anyone who is privleged enough to love or be involved with a child who has Down’s Syndrome. Stephen and Lori have an easy repartee while sharing personal stories and encouraging advice to parents, reminding them to build an accepting environment while celebrating their child’s individual milestones. They gently remind parents to be kind to themselves (and others!) while enjoyjng the journey with their child. We look forward to enjoyjng this podcast again in the future!
  • lala&lula
    Calming & soothing recommendation
    Informative loving parents. Stephen and Lori give useful tips on what to do and how to be prepared for your child's IEP. You can feel and hear the love and respect they have for each other and this process. We all need advocates like them.
  • Therapy Session
    A great resource for parents with special needs children
    This is a well made and informative podcast. If you’re a parent with special needs children, I highly recommend that you give this podcast a listen.
  • BoKnowsBoKnowsBo
    Podcast is like 2-hands-on-the-back kinda hug
    I heart this podcast with my arms extending for a 2 handed hug!
  • Mary_Orange_90
    If We Knew Then
    This podcast successfully walks the fine line of being engaging and providing useful information. While it provides useful content it is also an inspiration to keep fighting when it becomes difficult. While the focus is on Down Syndrome Advocacy, the inspiration is valuable to anyone fighting for a child with an IEP (and even those who don't have an IEP).
  • h2obabjlo
    A must listen
    Stephen and Lori provide valuable insight and information in this heartfelt podcast. A must listen for all families alike, absolutely inspirational!
  • cookiemac123
    Absolutely wonderful
    Stephen and Lori are obviously great parents. It is so inspiring to hear the good information they’ve learned along the way. Their podcast makes it easy for them to share the information in a very understandable way. This is a must listen for all patents and caregivers alike.
  • CavemanArt
    Instructive
    Stephen and Lori have done an amazing job of stepping up to provide parents of children with special needs with a truly invaluable resource for navigating this new normal that our world is now forced to embrace as a result of COVID-19.
  • csilver22
    This is much needed!
    This is a wonderful podcast touching on an important subject that seldom gets addressed by podcasts (or other mediums as well). Thank you for doing this!
  • Thadeus78
    This is so wonderful! ❤️
    Relevant and informational. An inspiring podcast!
  • Amandy Pandy Hailey
    Fantastic
    Stephen and Lori have created something wonderful once again (as they seem to with all they do). They are engaging and smart and the kind of parenting team there should be more of in this world. Regardless of whether you have been graced to have someone with Downs in your life, this podcast is a terrific must listen!
  • Grief Yoga
    So helpful!!
    This is so helpful. Thank you !
  • AP Nenn
    So great! Thank you!!!
    ❤️❤️❤️❤️❤️❤️❤️
  • Gambleland
    Fantastic information
    I highly recommend this Podcast. It’s a very informative resource for all parents.
  • sammi376
    Remarkable
    An incredibly helpful and resourceful podcast for parents of Down’s syndrome children. Lori and Stephen are the kindest and most compassionate people you’ll ever meet. They have walked this path with grace and strength, and are dedicated to helping those who are on similar journeys. 5+++
  • Studio City Family
    Great Resource
    Full of information not found anywhere else!
  • HollywoodWroc
    Tremendous Podcast!
    This podcast is a must-listen for everyone. It's a great resource for parents and individuals who can directly apply all the knowledge and advice given from shared experiences in the episodes. But it also allows people who have no previous experience with disability to better understand what parents of children with a disability deal with to advocate for their children.
  • RandyC34
    Great resource
    Highly recommended for any parent working to navigate these difficult times with Covid-19
  • 4Lhouse
    The Best!
    Engaging, informative. I appreciate how the information is presented in a honest and authentic manner.
  • DCHotard
    Excellent!
    Wonderful resource - THANK YOU for sharing and doing what you do!!
  • LilliLovesYou
    Inspiring
    Listening to Lori and Stephen calms me. They have so much information and ways of getting information. Hearing them speak makes me feel like anything is possible. And it gives me the information to make things possible for my children. Love you guys!
  • Kristalady
    Love this
    You guys are so awesome!
  • Bennyjohn 1
    Superbly informative podcast
    Lori and Stephen provide an extremely insightful and important resource for parents. Their approach is warm , compassionate and informative. Not your average podcast!! Excellent!!
  • VManthena
    An Amazing Resource!!!
    I feel blessed to have met Lori and Stephen through our kids’ school, and I have gained so much insight into advocating for my special needs child through my friendship with them. This podcast is an amazing resource for any parent navigating this new “learn at home” world with a child who has an IEP. Please tune in if you need some answers or just some support. They are the BEST!
  • GroovyTinkerbell
    Sharing information on personal journey that others can use
    Such a great podcast for those who need help and support in their journey with IEPs. Very useful information told in a caring way. The program is primarily geared for parents of children with Down syndrome but is helpful for other parents with children with IEP (individualized Education Plans).
  • 1234redlizard
    Amazing!
    Everyone’s normal is a little different. Thank you!
  • KatyChase
    Recommend
    Excellent resource for parents of children with Down Syndrome. Big fan of these very kind people.
  • big time skorps
    Great Job!
    Very Helpful podcast and easy to listen
  • AJ enlightened
    The Best
    These guys are the absolute BEST! Such a great resource. An absolute must! 👏🏽 🥰
  • DetroitLA
    Love and Authority
    If I knew Then podcast will become your go to source of useful resources, community and inspiration. Lori and Stephen are true believers and practitioners in what the power of an informed community can do to change lives. Looking forward to each episode!
  • carolyns iphone 5s
    Worth every minute
    Compassion and a clear guide to be the best you can bc it shows how that works and makes all life beautiful
  • pullhitter
    Early Intervention
    Thank you for an easy, informative view into early development. Our son Dennis is 40 years old now and this made me think back to this parenting period. The love, care and devotion is inspiring. 🙏
  • T. Sean Shannon
    Steve and Lori are the best.
    I'm lucky enough to know Steve and Lori as well as their kids, Liam and Sophia. They are an amazingly cool family. Would love to hear a podcast with Sophia and her perspective of having a little brother with Down Syndrome. Keep up the good work, guys.
  • ClubKitty
    So glad I subscribed!
    Will be sharing with other parents of children with special needs!
  • coach Al 174
    Great podcast!
    Very informative for anyone with children with or without physical disabilities. Please listen if you have babies.
  • darn_beetle
    A must listen
    I have been a fan of the their message for years. They continue spreading the awareness of raising a child with Down syndrome. This is a must listen.
  • ChettyChettyBangBang
    Two great parents who can help you become great too!
    Two calm and thoughtful parents who have a lot of experience in raising a child with down syndrome. Their optimism and joy in taking care of both their children is inspiring and this podcast is great for any parents out there.
  • breejayninja
    THE BEST!
    Seriously amazing parents to tell it like it is! What a gift this is, so nice to hear from real people with real experience🙏🏻🙏🏻
  • Solo123456
    Listen
    Very informative podcast. Everyone should give it a listen!
  • watsa matta u
    Happy to be listening 👍👍👍
    I want to thank my friends Steve and Lori for their commitment to helping parents with children with Down syndrome. They have been a real beacon of light and information. I’ve learned so much from them, and I don’t have children, but I think it’s important for everyone understand what the challenges are to raise them. And how we non parents can understand a better way to react to these little blessings. Info and understanding is key. Thanks and much love to you both. David Ringwald ❤️❤️❤️
  • Evelyn Palma
    Great Information
    Thank you for putting this valuable information out there. Listening to you guys makes me want to advocate more for my son. I believe parents need to be informed to be able to help their kids, especially with this challenging time (Covid19.) I think not enough information is out there on what to do and what to expect from the schools. Thank you
  • LittleEQ
    Great honest and informative point of view!
    Really enjoying this podcast! I am a clinician that works with kids with Down Syndrome and am enjoying this honest perspective from a family of a child with Down Syndrome. I also like all the information they are able to provide to families to help them navigate in a world where they have to always advocate for their child.
  • YouWhoThere
    Spreading positivity!
    I think parents raising special needs children will get a lot of support and information from this podcast. The guests add so much knowledge and I'm sharing this link to everyone that I think would benefit from it.
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